“Any of these conditions that children can have are serious – I know that – but when you say ‘heart condition’ it absolutely shatters you….

“The second we walked into the foyer, we started to cry. Being on the other side of charity was a new thing for us, and…

“If we can let someone else benefit from what we’ve been through, then that’s great. It’s really high up in our list of what’s important.”…