Scary Unknown: Tilly’s Story

Guest Blogger: Sarah Our daughter Tilly has Trisomy 5P, a rare chromosome disorder. This contributes to her low immune system. Tilly caught a cold and struggled for two weeks at our local hospital before being transferred to the Royal Manchester …

Dad’s Perspective: Phil’s Story

When Theo was born premature, 25 weeks into Lisa’s pregnancy, parents Lisa and Phil and Theo’s big brother Jack, had their lives turned upside down. Each day of the family’s journey on the NICU ward, Phil wrote a diary to help parents that may be going through similar experiences and praises the incredible work of the NHS. Here he documents the family’s day to day life, juggling work, family commitments, and being there for baby Theo while staying at Ronald McDonald House Manchester.

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